Friends, Family & Carers Forum

[Lauz]

Hi @zandibrot,

Thanks for sharing this book idea! I am sorry you have encountered such challenges. We also did a Topic Tuesday event last week that you might find useful to read through later around hearing voices here

[greenpea]

@Helen26 making you sh.

[Sandy1]

@mrsboots

a delusiuon is that real. you tend to believe it totally. it feels like your reality.

[Shaz51]

I agree @Sandy1 , self care for carers is very important

[Helen26]

I am glad to hear you have found hope, meaning and purpose. Diagnosis of any illness does not diminish our worth and we all we have to offer. 

[Lauz]

So as @Sandy1 has mentioned as the next discussion point around loss of identity and hope - how have you experienced this with your loved one? And what have you found to be helpful in restoring their sense of purpose?

[mrsboots]

Thank you Sandy. x

[Sandy1]

@Helen26

thanks helen. It's been a bonus to find hope etc when all seemed lost. and doing things like this gives a purpose and a chance to connect with others.

[greenpea]

@Sandy1 I havent reached that point yet. My son is still struggling as I am with the diagnosis.

[Lauz]

I'm curious @Sandy1 - from your experience, did it take you a while to restore your identity?