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  • Author : Mon0497
  • support : 4
  • Topic : Our stories
2018-10-10T08:52:03+00:00
Mon0497
Contributor

Hi

@Manary

How are you this evening? Its exhausting isn't it. My son with autism and end stage kidney disease refuses to go to his appointments and currently my daughter is an inpatient with a psychosis. I know how you feel. What I miss the most is the ability to just go away camping for the weekend. Sadly I can't see that happening for a long time.

I am not good at self care but what I have observed this year in the many hospitals that I have been in ( as a carer) is the support that pastoral care seems to give people.

I think this is a support available in the community. Or perhaps peer workers that have lived experience. Good luck and big hugs

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