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Re: Coping with life's difficulties

Hi @MJG017 How are you?

I cannot apologise enough about being pretty absent, to totally absent from the forums which especially meant that I was not chatting with you. I'm really sorry about that.

I sort of was on a bit when I got back from my trip and thought everything was good.

Then there was some comments on forums that I found very hurtful and invalidating and that made me back off and then I've been back and forth but no where near as much as before and pretty much absent really. I became really unwell and decided I'd had enough of the world. But I did not leave it, as was my intention. However, I have not really been here much since, just an occasional comment if someone tags me specifically (I don't answer the group tags, because there are other people who can chat).

The main thing about the forums I thought about while I was absent was not engaging with you. I have been engaging with a person in Yarning Space, which I hope is helpful for them I also wanted to keep up some engagement there. 

I went to a state level sport comp in Sydney on the weekend and again met up with the cancer survivors from around NSW in our specific events. I see prostate cancer survivors there at times and it reminded me of you.

I have just been engaged by my state's health department to do some Lived Experience work for educating health workers on people who are adult survivors of CSA and their interactions (or not) with health services. Initial it will be engagement with drug and alcohol services, but I want it to expand to all areas of health including cancer.

I don't log in much now but I noticed that you don't seem to either.

I hope you are ok and was wondering how your father-in-law is.

I hope you are able to continue on with your studies ok, it sounds like you've been busy.

 

 

Re: Coping with life's difficulties

Hi @Till23, good to hear from you again. 

 

Please don't feel like you need to apologise for not being around, i completely understand how hard it can be when in a tough place mentally, it sounds like that's where you've been, and i'm so sorry things have been so difficult for you.  I don't know what was said on the forum to you, but it's upsetting that someone would say anything hurtful or upsetting to you.  To anyone here really.  If this can't be a safe space for us, then something is very wrong.  I know it can be really hard to return to somewhere after something like that.  Even if it's just feeling invalidated it hard, so add more on top of that and it's completely understandable you took some time away.  Like I said though, i'm just sorry you had to go through that.

Personally, i'm very happy you're still here.  Not just for myself obviously, but hoping it means you're feeling like you're in a bit of a better space mentally.  I'm always happy to chat with you if you need it, or even if you just need to vent or take your mind of things.  I just hope you're doing okay now and feeling better.   

 

As you've noticed, I haven't been around much lately either.  Similarly, I only come on if i'm tagged in specifically, because that would just be from you, or one of the others I've made a bit of a connection with.  Most of them have disappeared so I haven't had a reason to come online.  I just think there's people better suited to offer wise words to people here.  If it's cancer or adoption (or attachment) related then I feel i can help, other than that I'm just not sure I can offer much.  As they say "stick with what you know".  I think i've just (finally) focused a bit more on myself.  So continuing my adoptee's counseling and psych sessions about the cancer.  It's really difficult to find people who will openly and honestly talk about the mental struggles of both and it makes it very isolating. But i'm not telling you anything you don't know.  And please don't take any of that as any sort of pressure to stay here.  If you feel it is ever too much for you to come online here, then that is what you have to do and I fully understand.  I guess I just wish there was something I could do to help in that situation.  I guess we all feel like that though when someone we know is struggling.        

As for me, I'm doing okay thanks.  Well, you know... okay.  Had my latest oncology appointment a couple of weeks ago, and yet another PET scan in a couple of months before I see him again.  So not much i can say (or do) about my situation until then.  Just trying not to think about the possibilities to be honest.  The best ones are just the least worst of a bunch of bad outcomes.  But whatever happens, at the moment they're all possible worries for another day. 

 

Thanks for asking about my partner's dad.  He's back at home.  Getting a bit of in-home rehab as he's still a bit unsteady on his feet, but doing well otherwise.  I haven't really done much course work since last term.  My lecturer gave me a short course to do over the holidays... 'working with people affected by adoption', after a chat we had about the PASS service at RASA (Relationships Australia SA) looking at the possibility of peer workers next year, and i'm doing my course with them so of course I said I was interested.  I've done one short-ish assignment (mine never seem to turn out short) but motivation had been lacking for a lot of things the past few weeks.  I think it may be something with all the hospital visits with my partner's father and then after all of them, my own oncology appointment... it just sort of hit me i think.  You thing you're handling everything okay, and then something just triggers and you realise that there had been something building for a while.  A bit like that idea of putting a from in a pot of water and slowly bringing it to the boil so the frog doesn't notice.  While sitting in the oncology waiting room, a funeral ad on the TV there certainly doesn't help.

 

Other than that, getting ready for September and prostate cancer awareness month.  I already have one possible TV spot lined up with the PCFA's PR people.  A segment to talk about the support group and why I started it and how it helps.  It's mainly to raise awareness about the Long Run fundraiser.  I'm entering again this year, but got a few of the guys from the group to form a team this year.  We've even set up a fundraising night... some musical bingo thing that is apparently popular at the moment.  We've raised enough so far to cover costs plus a bit more so it's going well.  It's only been a week and we've sold 2 tables and gotten a donation that has paid for the venue and the guy running the bingo so it's going well so far.  We have another month to sell the rest of the tables and get donations for raffle prizes and things so hopefully we can raise 2 or $3,000 from it.  Then add that to what each of raise individually with the Long Run and I've set our goal to $5,000 so we're a good chance at making that which would be an awesome result!  Plus if I can get some media opportunities again to spread the word about getting tested then it's a huge win.

 

Speaking of huge wins!  That is fantastic news about you doing that work for the State Health Department!  What an amazing opportunity to do some really great and important work.  How are you feeling about it?  Going from our chats here, it's hard to imagine they could have picked a better person for the job.  I'm sure you'll smash it!!  'Congratulations' doesn't seem right considering everything you've been through to be in the position of doing this job, but I'm sure you can help a lot of people and much a big difference. 

Re: Coping with life's difficulties

Hey @MJG017 nice to see your post and that you are going ok. Sounds like you’ve got a lot on. I’ll quickly write something here and I’ll come back to your post properly later. I like chatting to you and I feel I can be pretty real with you, I don’t really have that elsewhere.

Prostate cancer month is September and Breast cancer is October. We have some of our things in September though.
I just signed up tonight to do 7 Bridges walk in Sydney in October for Cancer Council (all cancers) which is 28km walk. I put my father as the person I am honouring by walking. Obviously the funds will go to Cancer Council projects they choose.

That will be the week after I come back from the Australian Masters games for my sport. Which will be about a month after the national sport event. I am doing too much I know, but it keeps my mind off things.

I got selected for another lived experience workshop about suicide which will be for 2 full days at end of this week.

It’s funny, I’m fine if I talk about cancer, poor mental health and suicide in general or for other people, I just put on a sort of mask and I can talk about myself, but I’m kind of dissociated from the feeling of it. But if I stop and think about my actual self, I’m not so fine. So, I’m currently using the avoidance strategy, but hoping it will help other people.

I’ll answer properly later as it’s 2am now and I’ve got to be at table tennis in a few hours!

Thanks for chatting and Catcha later

Re: Coping with life's difficulties

@Till23 I will wait for you longer reply before my own longer reply to your reply. 😀

 

I just wanted to say I completely get what you wrote about being able to talk about anything to others without much issue (masking all the way), but the difficulty starts when we start to think about our own situation.  That disconnect is gone and it feels like you're on a precipace... feet starting to slide down a rapidly crumbling edge.  Distraction is the only way to stop from falling in.  It's such a weird head space to be in.  It's difficult to figure out why on one hand we can talk about our situation so easily, but on the other hand, thinking about it can be so destructive to our mental health.  I feel like I learned a long time ago to switch this feelings off in order to get through life and interact the little I did with people.  But that switch can't stay off indefinitely, so we save it for when were talking to other people.  Which I've always wondered if it makes other people see me as a bit cold and uncaring, especially in the past.